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This is MitoMaverick

Raising awareness and helping others who suffer from mitochondrial disease

Meet Alia 

MitoMaverick is a website dedicated to sharing my own personal experiences and information that I have found has helped my journey with mito and maybe of help to other sufferers. This is why I have dedicated my time in sharing what has helped me over the years and I hope will be of interest and help to you!  I know how isolating it can be to have a rare disease like this that no-one completely understands and this website is aimed at those people in a similar position to me in the hope that it cuts down the time it takes to find solutions, just remember you are not alone and stay positive! 

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Eye  Tape 

Here is my experience about my ptosis and how I adapted and managed this.

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EHCP 

A step by step on what this is and how to apply for an EHPC

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PIP

This is a step by step on how to apply for PIP 

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Personal Mobility 

This is personal mobility I have found or used to help me on a day to day basis.

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Covid 19

This is how I coped during Coviid 19 

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Diet 

This is about my personal diet and how I have had to adapt to maintain my weight.

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Medication 

This is displaying the type of medication I take and what not to take 

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Grants 

This is showing how to and where to apply for a grant 

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Safety Equitment 

This is a range of safety equipment i have found or used to help me ​

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Chairity Supporter's 

This a page for any chairy supporters 

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Education and School 

My personal experiece of how I managed my time in education and school 

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Diagnosis 

This is how i was diagnosed with mito and might be useful for thoes who are struggling or unsure on what to do or where to go 

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Mobility Transport 

This is the types and ways of tranport i have used and how to apply

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Exercise and Physio 

Here I talk about exercise and my pysio 

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Celebrity supporter's 

This a link of celebrity supporters 

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Mission

My mission is to try and help anyone who is unsure on what to do, and try and help them in any way I can with what I have learnt and dealt with over the years ,

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Vision

My vision is to use this platform as a safe environment for sufferers with mitochondrial disease to share their stories about things which have worked well and not worked well. 

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Purpose 

The purpose is to provide information and to listen to other sufferers ideas and ways in which will help, whilst we wait and seek for a cure for mito :)​​

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